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Tags (4) : rare disease

Raising PBC Awareness Through Art: Gilead’s ‘All the Feelings’ Campaign

Raising PBC Awareness Through Art: Gilead’s ‘All the Feelings’ Campaign
05/22/2025 | Companies
Living with primary biliary cholangitis (PBC), a rare and chronic liver condition, can often feel like a lonely journey, says Dilek, a mother of two from Germany who is living with the disease. To help change that, Gilead has partnered with the PBC Foundation and Friends of the PBC Foundation to...
art and health, auction for charity, chronic liver disease, emotional health, European medical congress, Gilead, health campaign, healthcare collaboration, invisible illness, lived experience, liver disease awareness, medical awareness, Nour Khwies, patient advocacy, patient stories, PBC, PBC Foundation, primary biliary cholangitis, rare disease, resilience, visual storytelling

Boston Scientific Promotes DEI and Supports Employees with Disabilities

Boston Scientific Promotes DEI and Supports Employees with Disabilities
08/07/2023 | Companies
Shani Bird has been working on diversity, equity, and inclusion (DEI) for her whole career. She joined Boston Scientific, a company based in Marlborough, MA, in 2018 as the director of DEI. Her goal is to make Boston Scientific a place where everyone can succeed, no matter what their background or...
., accommodation, Boston Scientific, culture, DEI, disability, inclusion, Jackie, MacDonald, rare disease, Shani Bird, talent, XLH

Illumina NovaSeq X Plus Shines at ESHG Conference: Fastest, Most Accurate Sequencer Celebrates 25 Years of Innovation

Illumina NovaSeq X Plus Shines at ESHG Conference: Fastest, Most Accurate Sequencer Celebrates 25 Years of Innovation
06/26/2023 | Companies
The spotlight at this year's European Society of Human Genetics (ESHG) conference in Glasgow, Scotland, was on the Illumina NovaSeq X Plus. This advanced genomics technology, recognized as Europe's top genomics event, garnered the attention of numerous renowned researchers, clinicians, academics,...
accuracy, customer engagement, DNA sequencing, ESHG conference, genomics, Illumina, innovation, long-read technology, next-generation sequencing, NovaSeq X Plus, rare disease, scientific workshops, speed, sustainability, whole-genome sequencing (WGS)

Medtronic employee Yaya Garber champions rare diseases cause

Medtronic employee Yaya Garber champions rare diseases cause
02/22/2023 | Companies
Yaya Garber, Ron Garber's daughter, was born with 4H Leukodystrophy, an ultra-rare neurological disease that took her life at the age of 13 months. He recalls the confusion, isolation, and fear that accompanied Yaya's diagnosis of a rare disease with only 300 to 600 known cases. “After she...
4H Leukodystrophy, Chan Zuckerberg Initiative, deadly, death, neurological disease, rare disease, research, Ron Garber, ultra rare, Yaya Foundation, Yaya Garber


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